National Cancer Waiting Times Monitoring Data Set Overview

The National Cancer Waiting Times Monitoring Data Set contains the data required for monitoring the cancer waiting time standards introduced by Data Set Change Notice 22/2002, and has been updated to include those introduced by the Cancer Reform Strategy (2007).

The data items are presented in the same order as the Comma Separated Values (.csv) file which can be exported from Provider-based systems and uploaded to the Cancer Waiting Times system. This system is hosted nationally on NHSnet.

The seven columns show whether the data item is Mandatory or Optional for:

• M = Mandatory - the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis.  The Department of Health require the data to be submitted 25 working days after the end of each month or quarter.
• 
  
• M* = Mandatory if applicable - the Standard Contract Schedule 5 requires NHS provider ORGANISATIONS to submit this information on a monthly basis, where collection of the item was applicable to them.  The Department of Health require the data to be submitted 25 working days after the end of each month or quarter.
• 
  
• O = Optional
• 
  
• O* = Optional if applicable
• 
  
• N/A = Not Applicable
• 
  

The Department of Health introduced the policy document 'The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care' in 2007 to establish a consistent and standardised guide to implementing the delivery of continuing care.

Continuing care is care provided over an extended period of time, to a PERSON aged 18 or over, to meet physical or mental health needs that have arisen as a result of disability, accident or illness.

Further clarification can be found at the Department of Health website: "The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care".Further clarification can be found at the Department of Health website: The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care.

In order to monitor the implementation and effectiveness of the Framework, the Department of Health has introduced a mandatory collection which requires quarterly figures to report the eligibility for and provision of NHS CONTINUING HEALTHCARE during the REPORTING PERIOD.

The NHS Continuing Healthcare Quarterly Central Return Data Set should be submitted centrally via the Omnibus Survey system maintained by The NHS Information Centre for health and social care. More information can be found on the Omnibus Survey website.

The collection includes:

• PERSONS aged 18 or over, receiving 100% NHS CONTINUING HEALTHCARE and recognised as eligible to receive NHS CONTINUING HEALTHCARE due to a primary health need under the guidelines of the The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care. 
• PERSONS aged 18 or over, receiving 100% NHS CONTINUING HEALTHCARE and recognised as eligible to receive NHS CONTINUING HEALTHCARE due to a primary health need under the guidelines of The National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care. 
• PERSONS still recognised as eligible under the former Strategic Health Authorities eligibility criteria. This also includes PERSONS retrospectively identified as having a primary health need under the guidelines of the National Framework, that is for periods of care from October 1st 2007 onwards.
• A PERSON covered by Section 117 of the Mental Health Act 1983, as amended by the Mental Health Act 2007, who is receiving or is recognised as eligible to receive NHS CONTINUING HEALTHCARE for a primary health need that is not related to their mental health condition. Note: PERSONS covered by Sections 2, 3, 17 or 117 of the Mental Health Act 1983, as amended by the Mental Health Act 2007 are excluded.

The collection excludes:

• PERSONS identified retrospectively as having a primary health need for any period of care prior to October 1st 2007.
• PERSONS receiving either 100% or part NHS funding for NHS CONTINUING HEALTHCARE through other NHS funding streams.
• PERSONS receiving temporary 100% NHS funding for NHS CONTINUING HEALTHCARE , pending completion of a decision of eligibility to receive NHS CONTINUING HEALTHCARE.

A subtype of ACTIVITY.

Subtypes of ACTIVITY GROUP are:

A continuous period of care or assessment for a PATIENT by one or more CARE PROFESSIONAL. ACTIVITY GROUPS mainly consist of episodes, spells, stays or care periods.

An ACTIVITY GROUP may include one or more CARE ACTIVITIES.

ACTIVITY GROUPS include:ACTIVITY GROUP TYPE provides a list of ACTIVITY GROUPS.

• Accident And Emergency Episode
• Acute Myocardial Infarction Care Spell
• Adult Mental Health Care Spell
• Breast Cancer Care Spell
• Cancer Care Spell
• Cancer Treatment Period
• Care Home Stay (Consultant Care)
• Care Home Stay (Midwife Care)
• Care Home Stay (Nursing Care)
• Care Home Stay (Residential)
• Care Programme Approach Episode
• Care Spell
• Colorectal Cancer Care Spell
• Community Episode
• Consultant Episode (Acute Home-Based)
• Consultant Episode (Hospital Provider)
• Consultant Out-Patient Episode
• Dental Episode
• Drug Misuse Episode
• Sexual Health And HIV Episode
• Gynaecological Cancer Care Spell
• Head And Neck Cancer Care Spell
• Home Dialysis Episode
• Hospital Provider Spell
• Hospital Stay
• Lung Cancer Care Spell
• Mental Health Care Spell
• Mental Health Care Without Patient Consent
• Midwife Episode
• Neonatal Level Of Care Period
• Nursing Episode
• Palliative Care Episode
• PERSON STOP SMOKING EPISODE
• Pregnancy Episode
• Professional Staff Group Episode
• Regular Attender Episode
• Sarcoma Care Spell
• Skin Cancer Care Spell
• Supervised Discharge Episode
• Supervised Community Treatment
• Supervised Community Treatment Recall
• Supervision Register Episode
• Upper GI Cancer Care Spell
• Urological Cancer Care Spell
• Ward Stay

A type of CARE ACTIVITY.

A contact made with a PATIENT for the delivery of care.

CARE CONTACTS include:CARE CONTACT TYPE provides a list of CARE CONTACTS.

• Accident And Emergency Attendance
• Acute Home-Based Contact
• Audiology Attendance
• Cancer Clinical Status Assessment
• Care Programme Approach Review
• Clinic Attendance Consultant
• Clinic Attendance Midwife
• Clinic Attendance Non-Consultant
• Clinic Attendance Nurse
• Clinic Attendance Sexual and Reproductive Health Service
• Contact Tracing Activity
• Day Care Attendance
• Dental Treatment Contact
• Domiciliary Consultation
• Emergency Dental Attendance
• Face To Face Contact Community Care
• Face To Face Contact CPA Care Coordinator
• Face To Face Contact Dental
• Face To Face Contact Optical
• Face To Face Contact Social Worker
• Face To Face Contact Surveillance
• Genitourinary Care Contact
• Genitourinary Consultant Clinic Attendance
• GMP Consultation
• GMP Practice Consultation
• Home Assessment Visit
• Home Help Visit
• Maternity Domiciliary Visit
• Night Consultation Visit
• Nurse or Midwife Contact
• Out-Patient Attendance Consultant
• Professional Advice And Support Contact
• Professional Staff Group Contact
• Registration Health Check
• Sexual and Reproductive Health Domiciliary Visit
• Sheltered Work Attendance
• Sight Test
• Social Services Statutory Assessment
• Telephone Contact NHS Direct (Mental Health)
• Theatre Case
• Ward Attendance

Note: The list is in alphabetical order.

This item is being updated for development purposes and the changes have not yet been assured by the Information Standards Board for Health and Social Care. 

A type of PERSON PROPERTY.

Observations made regarding a PERSON. These observations do not include information about a treatment or intervention.

CATEGORY VALUED PERSON OBSERVATION allows coded classifications of observations about a PERSON and includes:CATEGORY VALUED PERSON OBSERVATION TYPE provides coded classifications of observations about a PERSON.

• ACCOMMODATION
• ALCOHOL STATUS
• ASPIRIN THERAPY LOCATION
• BLEED COMPLICATION
• CONTRACEPTION
• DISABILITY
• DISABILITY SEVERITY
• ETHNIC CATEGORY
• JOINT REPLACEMENT REVISION CLASSIFICATION
• LANGUAGE CLASSIFICATION
• MENTAL HEALTH ACT LEGAL STATUS CLASSIFICATION
• PATIENT CLINICAL GROUP
• PERFORMANCE STATUS
• PERSON GENDER
• PERSON MARITAL STATUS
• RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION
• RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION GROUP
• SARCOMA PREDISPOSING CONDITION
• SEXUAL ORIENTATION
• SKIN LYMPHOMA MORPHOLOGY

Note: MEASURED PERSON OBSERVATION allows for recording of measurements about a PERSON and OTHER PERSON OBSERVATION is where the PERSON states, for example, when they first experienced symptoms, the number of days on which alcohol has been consumed etc.

This item is being updated for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

A subtype of CARE ACTIVITY.

Information about medical or surgical actions performed on or planned to be performed on a PATIENT.

• Anaesthetic Service
• Anti-Cancer Drug Cycle
• Anti-Cancer Drug Fraction
• Anti-Cancer Drug Programme
• Anti-Cancer Drug Regimen
• Brachytherapy Treatment Course
• Clinical Investigation
• Contraceptive Service
• Dental Haemorrhage Service
• Dental Treatment
• Drug Dosage and Administration
• Drug Treatment
• Emergency Treatment Service
• Endocrine Therapy
• Fraction
• Hip Replacement Surgery
• Imaging Or Radiodiagnostic Event
• Immunisation Dose Given
• Joint Replacement Surgery
• Knee Replacement Surgery
• Labour And Delivery
• Lithotripsy Course Attendance
• Maternity Medical Service
• Minor Surgery Procedure
• Newborn Blood Spot Test
• Pathology Laboratory Investigation
• Patient Procedure
• Post Mortem
• Radiotherapy Treatment Course
• Screening Test
• Teletherapy Treatment Course
• Test Of Immunity
• Therapy After Discharge
• Thrombo Prophylaxis Regime
• Unsealed Source Treatment Course
• Vaccination Service
• Vasectomy Performed

This is a programme run by a Primary Care Trust (PCT) collaborative with a lead Primary Care Trust to provide general preventive or advisory services to groups of the population, or specific services to PATIENTS with identified needs or conditions.This is a programme run by a Primary Care Trust (PCT) collaborative with a lead Primary Care Trust to provide general preventive or advisory services to groups of the population, or specific services to PATIENTS with identified needs or conditions.

HEALTH PROGRAMMES include:

• Contact Tracing Programme
• Health Promotion Programme
• Immunisation Programme
• Nursing In The Community Programme
• Oral Health Programme
• Professional Advice And Support Programme
• Screening Programme
• Surveillance Programme

A PERSON involvement as a subject of a HEALTH PROGRAMME.

PERSONS IN PROGRAMME include:

• Immunisation Programme For Person
• Person In Advice And Support Programme
• Person In Contact Tracing Programme
• Person In Screening Programme
• Person In Surveillance Stage
• Immunisation Programme For Person
• Person In Advice And Support Programme
• PERSON in Contact Tracing Programme
• PERSON in Screening Programme
• PERSON in Surveillance Programme

One of the business definitions listed in the ACTIVITY GROUP class as a type of this class.A classification of an ACTIVITY GROUP.

Consultant Episode (Hospital Provider) has four 'sub types' (General, Birth, Delivery and Detained and Long Term Psychiatric Patient Census) which form four individual ACTIVITY GROUP TYPE values.

National Codes:

Note: The list is not in alphabetical order.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

A type of ASSESSMENT TOOL.

National Codes:

A classification of the stage of treatment reached during a Cancer PATIENT PATHWAY for primary, recurrent or metastatic cancer.

National Codes:

One of the business definitions listed in the CARE CONTACT class as a type of this class.A classification of a CARE CONTACT.

National Codes:

Note: The list is not in alphabetical order.

This item is being updated for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

One of the NHS Business Definitions listed in the CLINICAL INTERVENTION class as a type of this class.A classification of a CLINICAL INTERVENTION.

National Codes:

** Note that these codes have not yet been assured by the Information Standards Board for Health and Social Care.

The SMOKING STATUS of the PERSON at the time the TOBACCO USAGE is recorded.

National Codes:

Notes:
CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS is the same as attribute CANCER OR SYMPTOMATIC BREAST REFERRAL PATIENT STATUS.

Notes:
CANCER REFERRAL PRIORITY TYPE is the same as attribute CANCER REFERRAL PRIORITY TYPE.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required.

Notes:
The unique ACTIVITY IDENTIFIER of each Care Spell.

Care Spell is an ACTIVITY GROUP where the ACTIVITY GROUP TYPE is National Code 41 'Care Spell'.

Notes:
CLINICAL STATUS ASSESSMENT DATE (CANCER) is the same as Clinical Status Assessment Date.

Clinical Status Assessment Date is a ACTIVITY DATE TIME where the ACTIVITY DATE TIME TYPE is National Code 36 'Clinical Status Assessment Date'.

All Midwife Episodes and attendances are identified in the Commissioning Data Sets and Hospital Episode Statistics by a pseudo MAIN SPECIALTY CODE, 560, see Main Specialty and Treatment Function Codes. An Organisation Data Service Default Code is used in the CONSULTANT CODE field to show that a MIDWIFE is the responsible CARE PROFESSIONAL. Note that the MIDWIFE's own Nursing and Midwifery Council code is not used.

All Nursing Episodes and attendances are identified in the Commissioning Data Sets and Hospital Episode Statistics by a pseudo MAIN SPECIALTY CODE, 950, see Main Specialty and Treatment Function Codes. An Organisation Data Service Default Code is used in the CONSULTANT CODE field to show that a NURSE is the responsible CARE PROFESSIONAL. Note that the NURSE's own Nursing and Midwifery Council code is not used.

Notes:
CONTACT DATE (DIETICIAN INITIAL) is the Contact Date of the Initial Contact with a CARE PROFESSIONAL of the SERVICE TYPE c. 'Dietetics'.

The Initial Contact is an indication of whether the face to face contact is the first occasion on which a PATIENT is seen by the particular Professional Staff Group Service or any staff group (community) of the Health Care Provider. An Initial Contact begins an episode of care which comprises all the contacts made by the relevant staff of the Health Care Provider regardless of changes of LOCATION.

Contact Date is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where the ACTIVITY DATE TIME TYPE is National Code 39 'Contact Date'.An Initial Contact begins an episode of care which comprises all the contacts made by the relevant staff of the Health Care Provider regardless of changes of LOCATION.

Notes:
This is the date that the PATIENT is first seen in the Trust that receives the first referral.DATE FIRST SEEN is the date that the PATIENT is first seen in the Trust that receives the first referral. This data element is mandatory for PATIENTS referred urgently by their GENERAL PRACTITIONER for suspected cancer but can also be applied to other PATIENTS. The date will be one of the following, whichever is the earliest SERVICE relating to the REFERRAL REQUEST:

The date will be one of the following, whichever is the earliest SERVICE relating to the REFERRAL REQUEST:

Date First Seen may not be the same as FIRST SEEN BY SPECIALIST DATE (CANCER) which records the first time the PATIENT sees an appropriate specialist in cancer care.

Attendance Date is an ACTIVITY DATE where ACTIVITY DATE TIME TYPE is National Code 33 - Attendance Date.

Out-Patient Attendance Consultant is a CARE CONTACT where CARE CONTACT TYPE is National Code 27 - Out-Patient Attendance Consultant.

Imaging Or Radiodiagnostic Event is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 16 - Imaging or Radiodiagnostic Event.

Hospital Provider Spell is an ACTIVITY GROUP where ACTIVITY GROUP TYPE is National Code 21 - Hospital Provider Spell.

Start Date is an ACTIVITY DATE where ACTIVITY DATE TIME TYPE is National Code 31 - Start Date.

Date First Seen is an ACTIVITY DATE where ACTIVITY DATE TIME TYPE is National Code 45 - Date First Seen.

This is the ICD code of the condition giving rise to death as recorded on the death certificate.

This is the ICD code of the immediate cause of death as recorded on the death certificate.

This is the ICD code of a significant condition not directly related to death as recorded on the death certificate.

This is the ICD code of the underlying condition leading to death as recorded on the death certificate.

Notes:
DEATH CODE DISCREPANCY ORIGINATOR is the same as attribute DEATH CODE DISCREPANCY ORIGINATOR.

Notes:
DECISION TO TREAT DATE (ACTIVE MONITORING) is the same as the attribute DECISION TO TREAT DATE.

This data element is only mandatory when applicable in the National Cancer Waiting Times Monitoring Data Set which is when the planned first definitive treatment is active monitoring.This data element is only mandatory when applicable in the National Cancer Data Set which is when the planned first definitive treatment is active monitoring.

It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 09 'Active Monitoring' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a.It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 'Active Monitoring' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a. 'first definitive treatment planned'.

Planned Cancer Treatment is a PLANNED ACTIVITY where PLANNED ACTIVITY TYPE is National Code 02 'Cancer Treatment'.

Notes:
DECISION TO TREAT DATE (ANTI-CANCER DRUG REGIMEN) is the same as the attribute DECISION TO TREAT DATE.

This data item is only mandatory when applicable in the National Cancer Data Set which is when the planned first definitive treatment is chemotherapy or hormone therapy.

It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 03 'Chemotherapy' or 04 'Hormone therapy' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a. 'first definitive treatment planned'.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required.

Planned Cancer Treatment is a PLANNED ACTIVITY where PLANNED ACTIVITY TYPE is National Code 02 'Cancer Treatment'.

Notes:
DECISION TO TREAT DATE (BRACHYTHERAPY TREATMENT COURSE) is the same as the attribute DECISION TO TREAT DATE.

This data item is only mandatory when applicable in the National Cancer Data Set which is when the planned first definitive treatment is brachytherapy.

It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 06 'Brachytherapy' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a. 'first definitive treatment planned'.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required.

Planned Cancer Treatment is a PLANNED ACTIVITY where PLANNED ACTIVITY TYPE is National Code 02 'Cancer Treatment'.

Notes:
DECISION TO TREAT DATE (RADIOTHERAPY TREATMENT COURSE) is the DATE that a decision was taken to treat a PATIENT's condition with a RADIOTHERAPY TREATMENT MODALITY.DECISION TO TREAT DATE (RADIOTHERAPY TREATMENT COURSE) is the same as attribute DECISION TO TREAT DATE.

This is the DATE that a decision was taken to treat a PATIENT's condition with a RADIOTHERAPY TREATMENT MODALITY.

Where the treatment is being undertaken as part of a Cancer Treatment Period, where the CANCER TREATMENT MODALITY is National Code 05 'Teletherapy' or 06 'Brachytherapy', the DECISION TO TREAT DATE (RADIOTHERAPY TREATMENT COURSE) is the same as the CANCER TREATMENT PERIOD START DATE.

Notes:
DECISION TO TREAT DATE (SPECIALIST PALLIATIVE TREATMENT COURSE) is the same as the attribute DECISION TO TREAT DATE.

This data element is only mandatory when applicable in the National Cancer Waiting Times Monitoring Data Set which is when the planned first definitive treatment is specialist palliative care.

It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 05 'Specialist Palliative Care' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a. 'first definitive treatment planned'. 'first definitive treatment planned'.

Planned Cancer Treatment is a PLANNED ACTIVITY where PLANNED ACTIVITY TYPE is National Code 02 'Cancer Treatment'.

Notes:
DECISION TO TREAT DATE (SURGERY) is the same as the attribute DECISION TO TREAT DATE.

This data item is only mandatory when applicable in the National Cancer Data Set which is when the planned first definitive treatment is surgery.

It is the DECISION TO TREAT DATE of the Planned Cancer Treatment with a PLANNED CANCER TREATMENT TYPE National Code 01 'Surgery' and where the FIRST DEFINITIVE TREATMENT PLANNED is classification a. 'first definitive treatment planned'.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required.

Planned Cancer Treatment is a PLANNED ACTIVITY where PLANNED ACTIVITY TYPE is National Code 02 'Cancer Treatment'.

If National Code 99 - Other reason is recorded, further detail must be given for the precise cause of the delay, within DELAY REASON COMMENT (FIRST SEEN). 

Notes:
DIAGNOSIS DATE (CANCER) is the same as the attribute PERSON PROPERTY OBSERVED DATE.

The PERSON PROPERTY OBSERVED DATE for the PATIENT DIAGNOSIS where the PRIMARY DIAGNOSIS is 'cancer'.

This is the ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 11 'End Date'.This is the ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 'End Date'.

Notes:
This is the date on which the Brachytherapy Treatment Course ends. See also Radiotherapy Treatment Course.

END DATE (BRACHYTHERAPY TREATMENT COURSE) is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 11 'End Date'.END DATE (BRACHYTHERAPY TREATMENT COURSE) is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 'End Date'.

Brachytherapy Treatment Course is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National code 06 'Brachytherapy Treatment Course'.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

Notes:
The End Date of a period of care for a PATIENT, when the CARE PROGRAMME APPROACH LEVEL was National Code 'New Care Programme Approach Care'.

END DATE (CARE PROGRAMME APPROACH CARE) is an ACTIVITY DATE where the ACTIVITY DATE TIME TYPE is 'End Date' of the Care Programme Approach care.

Notes:
END DATE (MENTAL HEALTH CARE SPELL) is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 11 'End Date'. It is an optional data element in the Mental Health Minimum Data Set collection record and should only be present if the Adult Mental Health Care Spell has ended.

The Adult Mental Health Care Spell ends when all associated episodes, attendances or days are explicitly closed or ended by default where a PATIENT has received in-patient care terminated other than by transfer or death or had a current period of Mental Health Absence Without Leave (but still liable to detention), within the preceding 3 months.

For Mental Health Minimum Data Set purposes where the Health Care Provider cannot initiate and maintain Adult Mental Health Care Spell it is the function of the assembler process itself to determine whether the assembled Adult Mental Health Care Spell has ended or not, and provide the appropriate date to be used for the END DATE (MENTAL HEALTH CARE SPELL).

Adult Mental Health Care Spell is an ACTIVITY GROUP where ACTIVITY GROUP TYPE is National Code 23 'Adult Mental Health Care Spell'.

Mental Health Absence Without Leave is a LEAVE where LEAVE TYPE is National Code 01 'Absence Without Leave'.

Notes:
The date on which the Teletherapy Treatment Course ends. See also Radiotherapy Treatment Course.

END DATE (TELETHERAPY TREATMENT COURSE) is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 11 'End Date'.END DATE (TELETHERAPY TREATMENT COURSE) is the same as attribute ACTIVITY DATE of ACTIVITY DATE TIME where ACTIVITY DATE TIME TYPE is National Code 'End Date'.

Teletherapy Treatment Course is a CLINICAL INTERVENTION where CLINICAL INTERVENTION TYPE is National Code 29 'Teletherapy Treatment Course..

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.

Notes:Notes:
The End Time of a MENTAL HEALTH ACT LEGAL STATUS CLASSIFICATION for a PATIENT. 

END TIME (MENTAL HEALTH ACT LEGAL STATUS CLASSIFICATION) is an ACTIVITY TIME where the ACTIVITY DATE TIME TYPE is 'End Time' of the MENTAL HEALTH ACT LEGAL STATUS CLASSIFICATION.

The 16+1 ethnic data categories defined in the 2001 census is the national mandatory standard for the collection and analysis of ethnicity.

The national code must be transmitted as the first character in the 2 character field. The second character is optional for use locally. It must, however, be able to be grouped consistently with the 16 main categories.

The information recorded about ETHNIC CATEGORIES must be obtained by asking the PATIENT.

National code Z should be used where the PERSON has been given the opportunity to state their ETHNIC CATEGORY but chose not to.  Default code 99 should be used where the PERSON's ETHNIC CATEGORY is not known.

Notes:
This is the date that the PATIENT is first seen by the appropriate specialist for cancer care within a Cancer Care Spell. This is the PERSON or PERSONS who are most able to progress the diagnosis of the primary tumour. The date will be one of the following, whichever is the earlier ACTIVITY related to the Cancer Care Spell where the PATIENT saw an appropriate specialist for cancer care:

This date may be the same as DATE FIRST SEEN if the initial consultation was with an appropriate cancer specialist in the Trust that receives the first referral.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required. 

This is the code of the GP Practice that the PATIENT is registered with.

Use of Organisation Data Service Default Codes

• V81997 should be used when a PATIENT presents, who is not currently registered at a GP Practice, but is eligible to be registered should they wish to.
• 
  
• V81998 should be used where a PATIENT should not have a registered GP Practice, due for instance to them having only recently entered the country.
• 
  
• V81999 should be used where it is not possible to determine a PATIENT's registered GP Practice code, but it is known that they should have one, or where it is impossible to determine whether they should or shouldn't have a registered practice (for instance the PATIENT cannot communicate and is unidentified).

CODE OF GP PRACTICE (REGISTERED GMP) DESCRIPTION REPLACED 1 JUNE 2008. 

The code of the practice is an ORGANISATION CODE.

This is the code of the practice of the PATIENT's registered GENERAL MEDICAL PRACTITIONER which lets him or her be notified about treatment received by the PATIENT. The registered GENERAL MEDICAL PRACTITIONER may or may not be the same as the referring GENERAL MEDICAL PRACTITIONER.

This is the definitive grade of the tumour at the point of diagnosis.

Cancer Care Spell is an ACTIVITY GROUP where ACTIVITY GROUP TYPE is National Code 05 'Cancer Care Spell'.

This number is used to identify a PATIENT uniquely within a Health Care Provider. It may be different from the PATIENT's casenote number and may be assigned automatically by the computer system.

Where care for NHS PATIENTS is sub-commissioned in the independent sector or overseas, the NHS commissioner LOCAL PATIENT IDENTIFIER should be used. If no NHS LOCAL PATIENT IDENTIFIER has been assigned the independent sector or overseas provider identifier should be used.

See Location Type Codes for coding and usage.

The codes used for this Data Element are under review.

Permitted National Codes for use in the Commissioning Data Sets:

Use in the Future Outpatient CDS:
If the LOCATION TYPE where treatment is intended to take place is not yet known, this Data Element should be omitted.

Please note that the following Central Return forms have been discontinued with effect from 1st April 2004:
KC56: Patient Care in the Community: District Nursing
KC57: Patient Care in the Community: Community Psychiatric Nursing
KC58: Patient Care in the Community: Learning Disabilities NursingKC58: Patient Care in the Community: Learning Disabilities Nursing.

The PATIENT's surname at birth.

PERSON GENDER AT REGISTRATION is the same as PERSON GENDER CODE where the PERSON GENDER TYPE equals '01 - Person Gender at Registration'.

National Code 0 'Not Known' is not a permitted value for the National Workforce Data Set.

The e-Government Interoperability Framework (e-GIF) standard PERSON GENDER AT REGISTRATION will be replaced with PERSON GENDER CODE AT REGISTRATION, which should be used for all new and developing systems and for XML messages. 

References:
The e-GIF version approved for use in NHS England is:
Government Data Standards Catalogue: (GDSC), Version 2.0, Agreed 11 September 2003.
Further information can be found on the Cabinet Office website.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

Notes:
A PERSON's gender at registration.

PERSON GENDER CODE AT REGISTRATION is the same as PERSON GENDER CODE where the PERSON GENDER TYPE equals '01 - Person Gender at Registration'.

National Code 0 'Not Known' is not a permitted value for the National Workforce Data Set.

The e-Government Interoperability Framework (e-GIF) standard PERSON GENDER CODE AT REGISTRATION replaces PERSON GENDER AT REGISTRATION and should be used for all new and developing data sets and for XML messages. 

References:
The e-GIF version approved for use in NHS England is:
Government Data Standards Catalogue: (GDSC), Version 2.0, Agreed 11 September 2003.
Further information can be found on the Cabinet Office website.

Notes:
This records the Body Mass Index of the PERSON.

This value is derived from Weight in kilograms divided by Height in metres squared (kg/m²).

Notes:
The recorded Glycated Hemoglobin (HbA1c) of a PERSON.PERSON OBSERVATION (HbA1c LEVEL) is the recorded Glycated Hemoglobin (HbA1c) of a PERSON.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE = 'HbA1c' and the MEASUREMENT VALUE TYPE CODE = 'Number'.This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'HbA1c' and the MEASUREMENT VALUE TYPE CODE is 'Number'.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

Notes:
This records the Height of the PERSON in centimetres.PERSON OBSERVATION (HEIGHT IN CENTIMETRES) records the Height of the PERSON in centimetres.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'Height' and MEASUREMENT VALUE TYPE CODE is 'Centimetres'.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

Notes:
This records the Height of the PERSON in metres.PERSON OBSERVATION (HEIGHT IN METRES) records the Height of the PERSON in metres.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'Height' and MEASUREMENT VALUE TYPE CODE is 'Metres'.

Notes:
The recorded cholesterol level (Serum Cholesterol Level in mmol/L) of a PATIENT.PERSON OBSERVATION (SERUM CHOLESTEROL LEVEL) is the recorded cholesterol level (Serum Cholesterol Level in mmol/L) of a PATIENT.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE = 'Serum Cholesterol Level' and the MEASUREMENT VALUE TYPE CODE = 'mmol/L'.This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'Serum Cholesterol Level' and the MEASUREMENT VALUE TYPE CODE is 'mmol/L'.

Notes:
The recorded Serum Creatinine Level (µmol/L) of a PERSON using laboratory assay.PERSON OBSERVATION (SERUM CREATININE LEVEL) is the recorded Serum Creatinine Level (µmol/L) of a PERSON using laboratory assay.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE = 'Serum Creatinine Level' and the MEASUREMENT VALUE TYPE CODE = 'µmol/L'.This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'Serum Creatinine Level' and the MEASUREMENT VALUE TYPE CODE is 'µmol/L'.

Notes:
The recorded result of the urinary albumin level must be accompanied by a recorded URINARY ALBUMIN LEVEL TESTING METHOD.PERSON OBSERVATION (URINARY ALBUMIN LEVEL) is the recorded result of the Urinary Albumin Level and must be accompanied by a recorded URINARY ALBUMIN LEVEL TESTING METHOD.

Derive from the MEASURED OBSERVATION VALUE recorded for the MEASURED PERSON OBSERVATION TYPE CODE 'Urinary Albumin Level'.PERSON OBSERVATION (URINARY ALBUMIN LEVEL) is derived from the MEASURED OBSERVATION VALUE recorded for the MEASURED PERSON OBSERVATION TYPE CODE 'Urinary Albumin Level'.

This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care. 

Notes:
The DATE AND TIME on which the observation was made.PERSON OBSERVATION DATE AND TIME is the DATE AND TIME on which the observation was made.

Notes:
This records the Weight of the PERSON.PERSON WEIGHT records the Weight of the PERSON.

This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE = 'Weight' and the MEASUREMENT VALUE TYPE CODE = 'Kilograms'.This corresponds to MEASURED OBSERVATION VALUE where the MEASURED PERSON OBSERVATION TYPE CODE is 'Weight' and the MEASUREMENT VALUE TYPE CODE is 'Kilograms'.

The field must be padded to match the Format/Length pattern of n3.n3, for example 001.100 is a valid entry (1.1 is invalid).

For neonatal critical care, this will be the last recorded Weight on a particular ACTIVITY DATE (CRITICAL CARE).

The intention is for this item to reflect the actual (true) referrer. For example, following a GENERAL MEDICAL PRACTITIONER referral, a CONSULTANT may subsequently refer the PATIENT to another CONSULTANT within the Hospital Provider Spell. The code of the CONSULTANT making the referral and the CONSULTANTS ORGANISATION should be recorded in the Commissioning Data Set (CDS) rather than the code of the GENERAL MEDICAL PRACTITIONER referrer. This also applies where a CONSULTANT refers an NHS PATIENT to another doctor for NHS-commissioned treatment at another NHS Trust, a non-NHS provider, or an overseas provider. Where the CONSULTANT CODE is not known, the Organisation Data Service Default Code C9999998 should be used.

In all other cases, the code of the referring GENERAL MEDICAL PRACTITIONER should be recorded, if applicable. When a locum refers, use the GENERAL MEDICAL PRACTITIONER PPD CODE of the GENERAL PRACTITIONER for whom the locum is acting.

See CONSULTANT CODE and GENERAL MEDICAL PRACTITIONER (SPECIFIED) for the codes available for CONSULTANTS and GENERAL MEDICAL PRACTITIONERS and GENERAL DENTAL PRACTITIONERS.

If the REFERRER CODE is not known or not applicable e.g., the PATIENT has self-presented, the Organisation Data Service Default Code (X9999998) should be used.

Hospital Provider Spell is an ACTIVITY GROUP where ACTIVITY GROUP TYPE is National Code 21 'Hospital Provider Spell'.

Notes:
REFERRING ORGANISATION CODE is the ORGANISATION CODE of the ORGANISATION from which the referral is made, such as a GP Practice or NHS Trust. This information is essential for managing service agreements which are based on patterns of referral.

From 01 January 2009, this data element is no longer used in the National Cancer Waiting Times Monitoring Data Set.  It may still be used in other data sets or collected locally if required.

Notes:
SITE CODE (EMPLOYING ORGANISATION) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the employing ORGANISATION where the EMPLOYEE is employed or based from.

Notes:
SITE CODE (OF BRACHYTHERAPY) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the ORGANISATION at which the brachytherapy took place.

Notes:
SITE CODE (OF CANCER DRUG TREATMENT) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the ORGANISATION at which the Drug Treatment took place.

Notes:
SITE CODE (OF IMAGING) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the ORGANISATION at which the imaging took place.

Notes:
SITE CODE (OF SURGERY) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the ORGANISATION at which the surgery took place.

Notes:
SITE CODE (OF TELETHERAPY) is the same as attribute ORGANISATION SITE CODE.

The ORGANISATION SITE CODE of the ORGANISATION SITE of the ORGANISATION at which the teletherapy took place.

Notes:
SITE CODE (OF TREATMENT) is the ORGANISATION SITE CODE of the ORGANISATION where the PATIENT was treated, i.e. it should enable the treating ORGANISATION to be identified.

This identifies the ORGANISATION SITE within the ORGANISATION on which the PATIENT was treated, since facilities may vary on different hospital sites.

The code recorded should always be the national code; if the treatment is sub-commissioned to another NHS Health Care Provider or an independent UK provider, the SITE CODE (OF TREATMENT) used should be the ORGANISATION SITE CODE of the Health Care Provider actually carrying out the work.

Where treatment is sub-commissioned to an overseas provider the Organisation Data Service Default Code 89997 'Non-UK Provider where no ORGANISATION SITE CODE has been issued' is applicable. 

Each ORGANISATION has a unique ORGANISATION CODE. However, where an ORGANISATION has more than one site from which it provides SERVICES, then each site is uniquely identified. These sites are ORGANISATION SITES and are uniquely identified by ORGANISATION SITE CODE. The ORGANISATION SITE CODE contains the first 3 digits of the ORGANISATION CODE with the last two digits being the site identifier.

Example:

For out-patients, ACTIVITY may take place outside the hospital, such as in the PATIENT'S home; in such cases, raising a site code is impractical. Therefore, code R9998 'Not a hospital site (for use on Out-Patient CDS)' would be used in these circumstances.
Note: LOCATION CLASS is used in the Commissioning Data Set (CDS) message to indicate the classification of the physical LOCATION within which the ACTIVITY occurred. 

Use in the Future Outpatient CDS:
If the INTENDED SITE CODE (OF TREATMENT) is not known, this data element should be omitted.

Notes:
SITE SPECIFIC STAGING CLASSIFICATION is the same as attribute SITE SPECIFIC STAGING CLASSIFICATION.

Notes:
SOURCE OF REFERRAL FOR OUT-PATIENTS is the same as attribute SOURCE OF REFERRAL FOR OUT-PATIENTS.

Notes:
SYMPTOMS FIRST NOTED DATE is the same as the attribute PERSON PROPERTY EFFECTIVE DATE.

Notes:

TELETHERAPY BEAM ENERGY is the same as attribute TELETHERAPY PHOTON ENERGY for high energy photon beams or TELETHERAPY ELECTRON ENERGY for high energy electron beams.

Where the treatment is being undertaken as part of a Cancer Treatment Period, where the CANCER TREATMENT MODALITY is National Code 05 'Teletherapy' or 06 'Brachytherapy', the TREATMENT START DATE (RADIOTHERAPY TREATMENT COURSE) is the same as the TREATMENT START DATE (CANCER).

Notes:
TWO WEEK WAIT CANCER OR SYMPTOMATIC BREAST REFERRAL TYPE is the same as attribute TWO WEEK WAIT CANCER OR SYMPTOMATIC BREAST REFERRAL TYPE.

Notes:
This records the number of days that should be removed from the derived waiting time between the CANCER REFERRAL TO TREATMENT PERIOD START DATE and DATE FIRST SEEN.

Adjustments are only permissible when a PATIENT does not attend an Out-Patient Appointment or arrives late and could not be seen.  Guidance on calculating the number of days which may be deducted from the waiting time is available in Department of Health guidance at Cancer Waiting Times Documentation and Links.