NHS Continuing Healthcare Patient Level Data Set

The NHS Continuing Healthcare Patient Level Data Set has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2021.

Overview

The NHS Continuing Healthcare Patient Level Data Set has been incorporated early to allow users to see the changes, but please note that the implementation date is 1 April 2021.

At the time of publication of the NHS Continuing Healthcare Patient Level Data Set version 1.0, the implementation and conformance dates are subject to change depending on the need for continuing frontline investment in COVID-19 activity. Any change will be agreed between the Data Coordination Board and the developers, and will be announced in due course.

For further information please contact: england.chcdata@nhs.net.

Introduction

The NHS Continuing Healthcare Patient Level Data Set is PATIENT level, output based, secondary user data set. It delivers robust, comprehensive, nationally consistent and comparable PERSON centred information for people who are in receipt of, or whose eligibility is being assessed for, NHS Continuing Healthcare or NHS-funded Nursing Care. The data set does not include information about requests for an independent review of an NHS Continuing Healthcare eligibility decision.

As a secondary uses data set the NHS Continuing Healthcare Patient Level Data Set re-uses operational data for purposes other than direct PATIENT care. It defines the data items, definitions and associated value sets to be extracted or derived from local systems.

The data collected in the NHS Continuing Healthcare Patient Level Data Set covers all NHS Continuing Healthcare and NHS-funded Nursing Care ACTIVITY undertaken by Clinical Commissioning Groups (or other ORGANISATIONS acting on their behalf), in line with the NHS Continuing Healthcare (National Framework) in England.

The NHS Continuing Healthcare Patient Level Data Set is used by the Department of Health and Social Care, NHS England and NHS Improvement, commissioners and PATIENTS, as the data set provides:

National, comparable, standardised data about NHS Continuing Healthcare and NHS-funded Nursing Care, which will support intelligent commissioning decisions and SERVICE provision
Information on the use of resources to improve the operational management of SERVICES
Support for current national performance indicators for NHS Continuing Healthcare
Information for the future development of NHS Continuing Healthcare and NHS-funded Nursing Care.

Data Collection

The NHS Continuing Healthcare Patient Level Data Set provides the definitions for data to:

be lodged in the data warehouse regularly and routinely,
be assembled, compiled and to flow into a secondary uses data warehouse,
provide timely, pseudonymised PATIENT based data and information for purposes other than direct clinical care, e.g. planning, commissioning, public health, performance improvement, research, clinical governance.

Data is expected to be extracted and collated from the NHS Continuing Healthcare management systems used by Clinical Commissioning Groups to manage their NHS Continuing Healthcare function.

Data will be reported monthly.

Submission Information

The NHS Continuing Healthcare Patient Level Data Set is submitted to NHS Digital using the NHS Continuing Healthcare Patient Level Data Set XML Schema.

Format Information

Data for submission will be formatted into an XML file as per the Technology Reference Data Update Distribution (TRUD) page at: NHS Data Model and Dictionary: DD XML Schemas.

For enquiries regarding the XML Schema, please contact NHS Digital at enquiries@nhsdigital.nhs.uk.

Further Guidance

Further information and implementation guidance has been produced by NHS Digital and is available at: NHS Continuing Healthcare and NHS-funded Nursing Care (CHC).

Mandation

The Mandation column indicates the recommendation for the inclusion of data.

M = Mandatory: this data element is mandatory and the technical process (e.g. submission of the data set, production of output etc) cannot be completed without this data element being present
R = Required: NHS business processes cannot be delivered without this data element
O = Optional: the inclusion of this data element is optional as required for local purposes.

Specification


HEADER To carry header details.One occurrence of this group is required.
Mandation	Data Elements
M	DATA SET VERSION NUMBER
M	ORGANISATION IDENTIFIER (CODE OF COMMISSIONER)
M	ORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION)
M	PRIMARY DATA COLLECTION SYSTEM IN USE (NHS CONTINUING HEALTHCARE)
M	REPORTING PERIOD START DATE
M	REPORTING PERIOD END DATE
M	DATE AND TIME DATA SET CREATED


PERSONAL AND DEMOGRAPHIC To carry personal and demographic details.One occurrence of this group is required.
Mandation	Data Elements
M	LOCAL PATIENT IDENTIFIER (EXTENDED)
M	ORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER)
R	NHS NUMBER
R	NHS NUMBER STATUS INDICATOR CODE
R	PERSON BIRTH DATE
R	POSTCODE OF USUAL ADDRESS
R	PERSON STATED GENDER CODE
R	PERSON STATED SEXUAL ORIENTATION CODE
R	ETHNIC CATEGORY
R	RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION GROUP CODE (NHS CONTINUING HEALTHCARE)
R	PERSON DEATH DATE


REFERRALS, ASSESSMENTS AND OUTCOMES To carry referral, assessment and outcome details. One occurrence of this group is required.
Mandation	Data Elements
M	SERVICE REQUEST IDENTIFIER
M	LOCAL PATIENT IDENTIFIER (EXTENDED)
M	NHS CONTINUING HEALTHCARE ACTIVITY TYPE
R	REFERRAL REQUEST OR NOTIFICATION RECEIVED DATE (NHS CONTINUING HEALTHCARE)
R	REFERRAL REQUEST OR NOTIFICATION TYPE (NHS CONTINUING HEALTHCARE STANDARD)
R	SOURCE OF REFERRAL FOR NHS CONTINUING HEALTHCARE
R	REFERRING CARE PROFESSIONAL TYPE (NHS CONTINUING HEALTHCARE STANDARD)
R	NHS CONTINUING HEALTHCARE STANDARD CHECKLIST COMPLETED DATE
R	NHS CONTINUING HEALTHCARE FAST TRACK PATHWAY TOOL COMPLETED DATE
R	PATIENT LOCATION (NHS CONTINUING HEALTHCARE CHECKLIST)
R	APPROPRIATE CLINICAL STAFF GROUP COMPLETING NHS CONTINUING HEALTHCARE FAST TRACK PATHWAY TOOL
R	REFERRAL OR NOTIFICATION OUTCOME (NHS CONTINUING HEALTHCARE STANDARD)
R	REFERRAL REQUEST DISCOUNTED REASON (NHS CONTINUING HEALTHCARE)
R	REFERRAL REQUEST DISCOUNTED DATE (NHS CONTINUING HEALTHCARE STANDARD)
R	REFERRAL REQUEST ACCEPTED DATE (NHS CONTINUING HEALTHCARE FAST TRACK)
R	PATIENT SETTING DECISION SUPPORT TOOL COMPLETED (NHS CONTINUING HEALTHCARE STANDARD)
R	DECISION SUPPORT TOOL COMPLETED DATE (NHS CONTINUING HEALTHCARE STANDARD)
R	MULTIDISCIPLINARY TEAM RECOMMENDATION (NHS CONTINUING HEALTHCARE STANDARD)
R	CLINICAL COMMISSIONING GROUP ELIGIBILITY DECISION DATE (NHS CONTINUING HEALTHCARE STANDARD)
R	CLINICAL COMMISSIONING GROUP ELIGIBILITY DECISION OUTCOME (NHS CONTINUING HEALTHCARE STANDARD)
R	CLINICAL COMMISSIONING GROUP ELIGIBILITY DECISION OUTCOME COMMUNICATED TO PATIENT DATE (NHS CONTINUING HEALTHCARE STANDARD)
R	START DATE REQUESTED (NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE)
R	END DATE REQUESTED (NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE)
R	START DATE AGREED (NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE)
R	END DATE AGREED (NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE)
R	NHS CONTINUING HEALTHCARE REVIEW REQUEST RECEIVED DATE
R	NHS CONTINUING HEALTHCARE LOCAL RESOLUTION INFORMAL MEETING DATE
R	NHS CONTINUING HEALTHCARE LOCAL RESOLUTION FORMAL MEETING DATE
R	CLINICAL COMMISSIONING GROUP REVIEW ELIGIBILITY DECISION OUTCOME (NHS CONTINUING HEALTHCARE)
R	LOCAL RESOLUTION START DATE (NHS CONTINUING HEALTHCARE)
R	LOCAL RESOLUTION END DATE (NHS CONTINUING HEALTHCARE)
R	LOCAL RESOLUTION ELIGIBILITY DECISION OUTCOME COMMUNICATED TO PATIENT DATE (NHS CONTINUING HEALTHCARE)
R	FUNDING START DATE (NHS CONTINUING HEALTHCARE)
R	FUNDING END DATE (NHS CONTINUING HEALTHCARE)
R	NHS CONTINUING HEALTHCARE ELIGIBILITY START DATE FOLLOWING INDEPENDENT REVIEW
R	NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE DECISION MADE DATE
R	NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE DECISION OUTCOME
R	NHS CONTINUING HEALTHCARE PREVIOUSLY UNASSESSED PERIOD OF CARE ELIGIBILITY DECISION COMMUNICATED TO REQUESTER DATE


CARE PACKAGES To carry care package details. One occurrence of this group is required.
Mandation	Data Elements
M	CARE PACKAGE IDENTIFIER (NHS CONTINUING HEALTHCARE)
M	SERVICE REQUEST IDENTIFIER
R	CARE PACKAGE START DATE (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE END DATE (NHS CONTINUING HEALTHCARE)
R	PERSONAL HEALTH BUDGET TYPE
R	ORGANISATION IDENTIFIER (CODE OF PROVIDER)
R	ORGANISATION NAME (HEALTH CARE PROVIDER)
R	POSTCODE OF HEALTH CARE PROVIDER
R	COST CENTRE CODE (NHS CONTINUING HEALTHCARE)
R	SUBJECTIVE CODE (NHS CONTINUING HEALTHCARE)
R	CARE PRODUCT TYPE (NHS CONTINUING HEALTHCARE)
R	CONTRACT UNIT COST (NHS CONTINUING HEALTHCARE)
R	CONTRACT UNIT FREQUENCY CODE (NHS CONTINUING HEALTHCARE)
R	NUMBER OF COMMISSIONED WEEKLY HOURS OF CARE (NHS CONTINUING HEALTHCARE)


REVIEWS To carry review details. One occurrence of this group is required.
Mandation	Data Elements
M	CARE PACKAGE IDENTIFIER (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE REVIEW TYPE (NHS CONTINUING HEALTHCARE)
M	CARE PACKAGE REVIEW DATE (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE REVIEW OUTCOME CODE (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE REVIEW ELIGIBILITY OUTCOME (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE ELIGIBILITY STATUS CHANGE DATE (NHS CONTINUING HEALTHCARE)
R	CARE PACKAGE NEXT PLANNED REVIEW DATE (NHS CONTINUING HEALTHCARE)

Also Known As

This data set is also known by these names:

Context	Alias
Short name	NHS Continuing Healthcare Patient Level