NHS Connecting for Health
NHS Data Model and Dictionary Service
Reference: | Change Request 1088 |
Version No: | 1.0 |
Subject: | NHS Data Model and Dictionary Modelling Changes - Disability |
Effective Date: | Immediate |
Reason for Change: | Change to Data Standards |
Publication Date: | 18 January 2010 |
Background:
The NHS Data Model and Dictionary Service are currently working with the Department of Health and Information Centre for Health and Social Care to develop a number of Data Sets.
During the business analysis stage, it has been identified that these Data Sets cover a number of common areas which are either not currently in the NHS Data Model and Dictionary or amendments are required to make the current information suitable for use in these Data Sets.
This Data Set Change Notice adds the common data items and associated data modelling changes for "Disability" into the NHS Data Model and Dictionary in preparation for these Data Sets. The changes are detailed in the "Summary of changes" below.
The primary purpose is to introduce a new Disability and Disability Severity Class into the NHS Data Model to support the new data sets currently under development. This will enable the new data sets to use the generic data items and codes for reporting "Perceived" and "Registered" Disabilities and the Severity Level.
These changes do not need to be implemented in end-user systems until the Data Set Change Notices for the specific data sets come into effect. Other specific items will be added to the Data Sets during development.
Summary of changes:
Supporting Information | |
LEARNING DISABILITY | New Supporting Information |
Class Definitions | |
CATEGORY VALUED PERSON OBSERVATION | Changed Description |
DISABILITY | New Class |
DISABILITY SEVERITY | New Class |
Attribute Definitions | |
CATEGORY VALUED PERSON OBSERVATION TYPE | Changed Description |
DISABILITY SEVERITY CODE | New Attribute |
REGISTERED DISABILITY CODE | New Attribute |
REGISTERED DISABILITY END DATE | New Attribute |
REGISTERED DISABILITY START DATE | New Attribute |
Data Elements | |
DISABILITY SEVERITY CODE | New Data Element |
REGISTERED DISABILITY CODE | New Data Element |
REGISTERED DISABILITY END DATE | New Data Element |
REGISTERED DISABILITY START DATE | New Data Element |
Date: | 18 January 2010 |
Sponsor: | Ken Lunn, Director of Data Standards and Products, NHS Connecting for Health |
Note: New text is shown with a blue background. Deleted text is crossed out. Retired text is shown in grey. Within the Diagrams deleted classes and relationships are red, changed items are blue and new items are green.
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Change to Supporting Information: New Supporting Information
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
A Learning Disability (formerly known as a Mental Handicap and referred to as an Intellectual Disability) is a type of DISABILITY.
A Learning Disability usually has a significant impact on a PERSON's life. A PERSON with a Learning Disability finds it harder than others to learn, understand and communicate.
People with Profound and Multiple Learning Disabilities (PMLD) need full-time help with every aspect of their lives, including eating, drinking, washing, dressing and toileting etc.
Someone is considered to have a Learning Disability when they function at a level of intellectual ability which is significantly lower than their chronological age. This is usually considered to be equivalent to having an Intelligence Quotient (IQ) of seventy or less:
- Mild Learning Disability (roughly equivalent to an IQ of fifty to seventy) is comparable to the educational term 'Moderate Learning Difficulty'. It is usually caused by a combination of restricted learning and social opportunities plus a high rate of low to average intellectual ability and Learning Disability in close relatives.
- Moderate-to-profound Learning Disability (roughly equivalent to an IQ below fifty) is comparable to the educational term 'Severe Learning Difficulty'. It usually has a specific biological cause.
Note: A Learning Difficulty is a type of Special Education Need which affects areas of learning, such as reading, writing, spelling, mathematics etc.
Further information on Learning Disabilities, can be found on the internet, for example:
Change to Class: Changed Description
This item is being updated for development purposes and the changes have not yet been assured by the Information Standards Board for Health and Social Care.
A type of PERSON PROPERTY.
Observations made regarding a PATIENT. These observations do not include information about a treatment or intervention.
CATEGORY VALUED PERSON OBSERVATION allows coded classifications of observations about a PATIENT, whereas MEASURED PERSON OBSERVATION allows for recording of measurements about a PATIENT.
CATEGORY VALUED PERSON OBSERVATIONS include:
- ACCOMMODATION STATUS
- ALCOHOL STATUS
- ASPIRIN THERAPY LOCATION
- BLEED COMPLICATION
- DISABILITY
- DISABILITY SEVERITY
- ETHNIC CATEGORY
- JOINT REPLACEMENT REVISION CLASSIFICATION
- LANGUAGE CLASSIFICATION
- LEGAL STATUS CLASSIFICATION
- PATIENT CLINICAL GROUP
- PERFORMANCE STATUS
- PERSON GENDER
- PERSON MARITAL STATUS
- RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION
- RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION GROUP
- SARCOMA PREDISPOSING CONDITION
- SEXUAL ORIENTATION
- SKIN LYMPHOMA MORPHOLOGY
Change to Class: New Class
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
An indication of whether a PERSON is disabled.
This can be either a:
- Registered Disability:
- Perceived Disability:
Under the Disability Discrimination Act (DDA), a disabled PERSON is defined as "someone who has a physical or mental impairment that has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities". See the Directgov website.
Change to Class: New Class
REGISTERED DISABILITY CODE | ||
REGISTERED DISABILITY END DATE | ||
REGISTERED DISABILITY START DATE |
Change to Class: New Class
may be the category for one or more CATEGORY VALUED PERSON OBSERVATION | |
may be classified by one and only one DISABILITY SEVERITY |
Change to Class: New Class
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The severity of a DISABILITY for a PERSON.
This could be as stated by a PERSON or as agreed between a PERSON and the CARE PROFESSIONAL.
Change to Class: New Class
DISABILITY SEVERITY CODE |
Change to Class: New Class
must be classified for one and only one DISABILITY | |
may be the category for one or more CATEGORY VALUED PERSON OBSERVATION |
Change to Attribute: Changed Description
This item is being updated for development purposes and the changes have not yet been assured by the Information Standards Board for Health and Social Care.
One of the related classification Classes listed in the CATEGORY VALUED PERSON OBSERVATION description as a type of this Class.
National Codes:
Change to Attribute: New Attribute
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The severity of a DISABILITY for a PERSON.
This could be as stated by a PERSON or as agreed between a PERSON and the CARE PROFESSIONAL.
National Codes:
01 | None |
02 | Mild |
03 | Moderate |
04 | Severe |
05 | Extreme |
Change to Attribute: New Attribute
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The Registered DISABILITY of a PERSON, as stated by a PERSON.
A PERSON can have more than one Registered DISABILITY.
National Codes:
01 | Behaviour and Emotional |
02 | Hearing |
03 | Manual Dexterity |
04 | Memory or ability to concentrate, learn or understand (Learning Disability) |
05 | Mobility and Gross Motor |
06 | Perception of Physical Danger |
07 | Personal, Self Care and Continence |
08 | Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc) |
09 | Sight |
10 | Speech |
X | Other |
N | No Registered DISABILITY |
Z | Not Stated (PERSON asked but declined to provide a response) |
Change to Attribute: New Attribute
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The date on which a PERSON ceased to be registered on the DISABILITY Register with their Local Authority.
Change to Attribute: New Attribute
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
The date on which a PERSON was registered on the DISABILITY Register with their Local Authority.
Change to Data Element: New Data Element
Format/Length: | an2 |
HES Item: | |
National Codes: | See DISABILITY SEVERITY CODE |
Default Codes: |
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
Notes:
DISABILITY SEVERITY CODE is the same as attribute DISABILITY SEVERITY CODE.
Change to Data Element: New Data Element
Format/Length: | an2 |
HES Item: | |
National Codes: | See REGISTERED DISABILITY CODE |
Default Codes: |
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
Notes:
REGISTERED DISABILITY CODE is the same as attribute REGISTERED DISABILITY CODE.
Change to Data Element: New Data Element
Format/Length: | see DATE |
HES Item: | |
National Codes: | |
Default Codes: |
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
Notes:
REGISTERED DISABILITY END DATE is the same as attribute REGISTERED DISABILITY END DATE.
Change to Data Element: New Data Element
Format/Length: | see DATE |
HES Item: | |
National Codes: | |
Default Codes: |
This item is being used for development purposes and has not yet been assured by the Information Standards Board for Health and Social Care.
Notes:
REGISTERED DISABILITY START DATE is the same as attribute REGISTERED DISABILITY START DATE.
For enquiries about this Data Set Change Notice, please email datastandards@nhs.net